Author: Graeme Innes AM

White Cane Warrior

Kids can be hard to keep entertained on long summer holiday drives. Some parents resort to telling exaggerated stories of daring-do from their youth. It’s marginally better than I Spy or punch buggy (which consists of punching someone when you see a Volkswagen beetle).
One such story popped into my head as we stopped at the dog sitting on the tuckerbox five miles from Gundagai  on our way to Melbourne recently. And I couldn’t resist re-telling it.
Part of my youth was spent as an activist in the disability movement, travelling around the country to various meetings and conferences. On one of these occasions, I was travelling back to Sydney from Wagga Wagga in a car full of my mates, and our various mobility aids – a couple of wheelchairs, a walking stick, and my own white cane. We decided – as you do – to stop for a hamburger at the dog on the tucker box café. (Please imagine at this point loud tuneless renditions of “the dog sat on the tucker box, and the protesting groans of eleven-year-olds).
We had found a table and ordered our hamburgers and milkshakes when a group of bikies arrived. Now, these weren’t bikers – that gruff, rugged bunch who look tough in their leathers and helmets, but underneath are just your average suburban boys with the need to bleed off a bit of extra testosterone. These were bikies – the sort who live outside the law, and communicate with grunts and rattles of the chains they wear around their necks. And their idea of fun that day was to harass the young woman managing the tucker box hamburger joint.
Now in those days I was a fighter for equality on the front line, not using the more conservative legal tools that I use today. And I was offended by the crass and sexist behaviour they were demonstrating. Their lewd suggestive comments, urged on by the support of their mates, were causing her a lot of discomfort.
But what could I do – one bloke with an aluminium white cane, whose pecs needed a lot more work, up against half a dozen tattooed gym-junkies with chains at the ready. So, I came up with a cunning plan.
They had parked their machines on either side of our car. So, borrowing the car keys from my mate in the wheelchair, I proceeded to walk to the car, white cane prominently on display, in full view of the marauding horde.
I tapped my way to the driver’s door, got in, started the engine and revved it a couple of times.
Balancing the opportunity to have some fun at the expense of the female hamburger operative, against the potential terminal damage to their prized modes of transport from my driving, the retreat was prompt and absolute. I’ve never known a group of motor bikes to leave more burned rubber in the car park of a hamburger joint.

Which just goes to show that brains can sometimes outwit brawn, and disability can have some advantages. At least, that’s the way I told the story to my kids.
Have you had to put up with a parent who thinks he tells a good yarn? Was I being brave or foolish? Tell me what you think.
Graeme Innes is Australia’s Disability Discrimination Commissioner, and an inveterate story-teller. He has kissed the Blarney stone and is prone on the odd occasion to leaven his stories with a small amount of exaggeration. An earlier version of this article was published in the Sydney Morning Herald.

Defining matters

I’m neutral on bumper stickers, I don’t hate them as the picture suggests. You can buy them from auto shops, or customise them from places such as http://www.ebay.com.au/bhp/bumper-stickers http://www.zazzle.com.au/bumperstickers http://www.cafepress.com.au/+bumper-stickers

I get the “baby on board” stickers – as a parent I’m strongly into protecting my child. I understand the “I shoot and I vote” sticker as a political statement- one with which I strongly disagree. And I am puzzled by the “Republicans for Voldemort” sticker found on a US bumper sticker site.

But I don’t get the idea of describing your family, and what is important to each of them, in a set of pictographs on the back of your car.

Variety is the spice of life http://www.thefreedictionary.com/variety+is+the+spice+of+life But for me they are like wearing budgie smugglers in public, keeping a snake as a pet, or eating raw fish- you go ahead and do that, but include me out.

Normally these stickers would not impinge much on my life. As someone who does not see, they are just like the blizzard of advertising billboards which fill blank spaces everywhere- I go through my life blissfully unaware of them.

However my wife Maureen, http://www.twitter.com/gizmoshelley bless her, has a wonderful nack of inserting the visual information I miss into our conversations. I really value this, because otherwise there is knowledge and awareness of society, pop culture, and our surroundings generally that I would just not have. Although a little less of the botanical explanations would be great please Darling.

My erudite wife doesn’t do it in a “here’s an announcement about something which would not have been a part of your life if I had not told you” kind of way. She just weaves it into the conversation, in the same way I might weave in something read in a newspaper. It’s just a natural part of the interaction and sharing which is one of the continuing strengths of our relationship.

Several weeks ago, Maureen commented on the family pictograph stickers on the car in front. “That’s a typical family,” she said. “The dad plays golf, the mum cooks, the son plays the guitar, oh, and the daughter uses a wheelchair.” She continued the conversation by remarking on the innate sexism in the story that was told- the dad is notable for what he clearly enjoys (playing golf) and the mum for one of her contributions to the family (working in the kitchen).

However, my mind went in an entirely different direction, and I was overwhelmed with sadness. My sadness related to the daughter.

Everyone else in the family was marked for what they enjoyed, or what they did. The daughter was marked for her disability.

One take on this might be that its good that the disability was out there and on display- not hidden away as it has been for many years. But that’s not my take.

My take is incredible sadness that the daughter herself, and-or the family who are probably her greatest supports, define her by her disability. The most important thing about her, the thing that they choose to put on public display on the bumper of their car, is not her violin playing, her love of One Direction or Justin Beeber, it is her disability.

What makes me even more sad is that this is a reflection of our society. As the 20% of us in Australia who have a disability http://www.abs.gov.au/disability-statistics – or perhaps the less than 20% who have a visible disability – go through our lives, this is usually the way we are defined. Not as Stella http://www.abc.net.au/rampup the witty and thought-provoking journalist, but as Stella who uses a wheelchair. Not as Ron http://www.wikipedia.org/wiki/Ron_McCallum the professor of law, who is expert in industrial relations and chaired a UN committee, but as Ron who is blind. Not as Tim http://www.twitter.com/withtimferguson that really funny guy who was part of the Doug Anthony All Stars, http://www.wikipedia.org/wiki/Doug_Anthony_All_Stars but as Tim who has MS.

These three, and many others, are doing a damn good job of breaking down that stereotype. But its still true that the biggest barrier Australians with disabilities face is the attitude barrier.

Don’t get me wrong. I’m not proposing that we go back to the bad old days – still current for some – of hiding disability by locking people away in bedrooms or institutions. Disability is part of us, and needs to be included within our diverse Australian community. But it should not define us.

I continue to strive for a time when – if we pull up behind that car again, and if my wonderful wife shares her view of that part of the world with me – the daughter, too, will be living the dream rather than defined by a small part of the reality.

Should disability define us? Is society right to refer to our disability first? Tell me your thoughts.

Graeme Innes is Australia’s Disability Discrimination Commissioner, and is occasionally known to rant about issues brought up in casual conversations. His utter lack of knowledge and interest on matters botanical is an occasionally appearing cloud in the otherwise sunny skies of his marriage to Maureen.

A bumper sticker that says I hate bumper stickers

You can take that to the Bank

Guide dog asleep
Arrow the guide dog taking a well-earned rest

Travelling with a guide dog http://www.guidedogs.com.au is a great way to get around- it removes some of the stress of travel, and can have other advantages. Many is the time I have walked into a room or lift and heard – “Aw, look, beautiful,” or “Sooo cute”. To which I usually reply: “Yes, and the dog doesn’t look bad either”.

I had completed a meeting with some senior bank officials in Brisbane. Walking with my guide dog, I got into the elevator on the 30th floor of their building at the same time as another person. The lift buttons were not marked with raised letters or Braille, so I didn’t know which one to press. Turning to the other man in the lift I said: “Could you press the button for ground please?” I got no response.

Thinking that he may have a hearing impairment – I am the disability Discrimination Commissioner after all – I looked directly at him, so he could read my lips, and said a little more loudly “Could you press ground please?” Still no response.

Puzzled, I reached over and tapped him on the shoulder, and repeated my request.
“Oh,” he said, “Are you talking to me. I thought you were asking the guide dog.”

My dog’s good, but she hasn’t learned to read lift buttons yet!

Graeme Innes travels with a black labrador guide dog called Arrow, and spends some of his spare time thinking up funny responses to such questions as- “What’s your dogs name?”
“Can your dog read bus numbers?” and
“Does your dog have its own mobile phone?”

What funny guide dog questions have you asked or heard? Have you ever said something embarrassing to a guide dog user? Please tell me about it?

A Happy Apper

When you’re travelling and can’t see, the mini bar can provide some dilemmas.  How much you drink is a matter for you- what you drink can be more of a lottery.

I travelled from Sydney to Auckland recently at the request of RRRT  to conduct some training for Pacific country politicians on the Convention on the Rights of People with Disabilities.  I got to my hotel without being waylaid by hobbits or dragons and discovered that my Aussie dollar didn’t have quite the clout it had last year.

The length of the flight and the two hour time change meant that I arrived mid to late evening, after the hotel restaurant had closed.

I turned to the mini bar for a cleansing ale before retiring.

Reaching into the “electric chillibin” known as an Esky or fridge on this side of the Tasman, my hand discovered four bottles with crown seals, which could have been beers.  But were they beers, and which beers were they?

Who ya gonna call? Out comes the iPhone, and I tell Siri to “open Tap Tap See.”

I place the bottle on the top of the fridge, point the iPhone camera and click the app.  Seconds later Karen (the voice of the iPhone)  tells me it is Jack Daniels bourbon. Not what I want.

Two bottles later, using the same process, the Crownie  I’m looking for comes up in the camera lens, and Karen announces the result.

I crack the twist top crown seal, and settle back to enjoy my New Zealand beer, a happy apper.

Graeme Innes is a lover of accessible apps, and experiences significant withdrawal symptoms when his iPhone is not in his hand or pocket.

Scarlet Ribbons

A friend gave us tickets to see Celtic Woman (link http://celticwoman.com/ ) recently.

It was a very pleasant experience. Beautiful young women, clearly classically trained, sang a selection of traditional Irish and Scottish songs mixed with a few “modern classics”, which were not so much to our taste.  The voices, musicianship and dancing were all excellent.

My favourite song was a beautiful rendition of Scarlet Ribbons (For Her Hair) (link http://www.songlyrics.com/harry-belafonte/scarlet-ribbons-lyrics/# ) sung by the newest member of the group, Mairéad Carlin (link http://celticwoman.com/mairead-carlin/ ).

The story the song tells is enchanting.  A mother hears her little girl make a request.

“I peeked in to say goodnight

And then I heard my child in prayer

Send for me some scarlet ribbons

Scarlet ribbons for my hair.”

The mother knows that, despite her best efforts, they cannot be obtained.

“All the stores were locked and shuttered

All the streets were dark and bare

In our town no scarlet ribbons

No scarlet ribbons for her hair.”

How times have changed.  In this modern world it might be an iPad Air, or an iTunes card.  But in that Irish village in the first part of the 20th century it was scarlet ribbons.

The mother, let’s call her Marie, was devastated that she could not grant this wish for her beautiful daughter.

“Through the night my heart was aching”.

And she shared her grief with her husband.

But, when she went to look in at the child early in the morning she could not believe her eyes.

“Just before the dawn was breaking

I peeked in and on her bed

In gay profusion laying there

Scarlet ribbons, scarlet ribbons

Pretty scarlet ribbons for her hair.”

As I listened to the beautifully sad lyrics, enunciated perfectly by the clear sweet voice of Mairéad, who learnt the song from her grandmother, my mind turned to the practicalities of how this magic was achieved.  A picture started forming in my mind.

Come back with me to an Irish country home before the 1940s.  Marie has cleared up after dinner, and put her daughter to bed.  Tom is resting in his dad’s old armchair by the fire, enjoying a quiet pipe after a long day hoeing in the new potato crop.  The sounds of his daughter’s prayers drift down to him from the room above.

A dim memory slowly forms in his mind, and he stands, knocking out his briar pipe on the hearth.

“I’m just going for another scuttle of coal to tide us through the night”, he calls up to Marie.  She has forgotten that he filled the scuttle before dinner, and does not question him.

Quickly putting on his coat, he hurries out to the byre in the yard.  He goes in quietly, not wanting to disturb the two old milking cows resting inside.  He climbs up to the loft, and starts poking through the boxes of odds and ends carried from his mother’s house when she passed away some years ago.  Towards the bottom of the pile he finds the old sewing chest he is looking for, opens it, and his memory springs into reality.

He hurries back to the house, knocking the snow from his boots at the back door.  And, after his wife has fallen into a fitful and disappointed sleep, he creeps into his daughter’s room and distributes his prize.

He doesn’t need to tell Marie – the joy on the faces of his wife and daughter the next morning are all the reward he needs.

“If I live to be a hundred

I will never know from where

Came those lovely scarlet ribbons

Scarlet ribbons for her hair…”

Graeme Innes is an advocate for social justice, and a dad who is often gratified by the pleasure he can bring to the women in his life.

You can follow him on Twitter at @Graemeinnes (link https://twitter.com/Graemeinnes )